Health+datasets+and+hack+days

=October 2014 update for Health Hack: []=

(HealthHack 2013 summary [|Hacking for health research] by The Age

[|National Preventive Health Surveillance in Australia: a guide to understanding governance and coordination] December 2013 Published by the Australian National Preventive Health Agency (make a copy of it because this is a [|non-ongoing] commonwealth agency)

Reeves, P; Keese, P. (2013) [|Finding Common Ground: Establishment of a Regulatory Science Network] For each of the bubbles in slide 2, the corresponding agency manages one or several datasets. It would be good to have a conversation on which ones should be available as open data apart from:
 * [|APVMA PUBCRIS] dataset for registered Agricultural and Veterinary Chemical Products and Approved Actives which is on [|data.gov.au] (CC 3.0)


 * REMINDER : ** there is an data.gov.au ideascale web site for [|Government Datasets or APIs suggestions] Please add your own and/or vote for existing ones (check also the comments)
 * [|Food Nutritional Information] (NUTTAB 2010)
 * [|Health Data by Locality]
 * [|Health inequality]
 * [|Medical research] (not specific enough as a suggestion but a good list of organisations with data)


 * REMINDER:** some health data was released for [|GovHack 2014]
 * AIHW datasets [|http://www.aihw.gov.au/data-by-subject/]

=Elsewhere=

Stefaan Verhulst, Beth Simone Noveck, Robyn Caplan, Kristy Brown, Claudia Paz The GOVLAB (NYU) May 2014 THE OPEN DATA ERA IN HEALTH AND SOCIAL CARE A blueprint for the National Health Service (NHS England) to develop a research and learning programme for the open data era in health and social care []

**Open Health Data**

A page to feed the discussions of the Canberra Heath Tech Meetup Group on Open Data [] and prepare future activities

//State of Open Data for health//

Publicly-funded research
 * 06/2011 [|Review to improve the transparency of the Therapeutic Goods Administration]
 * 02/2012 “NHMRC signatory to Wellcome Trust’s [|Joint Statement on Data Sharing of Public Health Research] ” (Warwick Anderson, [|The Conversation] )
 * 04/2012 US Dept of Health & Human Services [|Open Government Plan V. 2.0]
 * 12/2012 Cochrane Linked Data Project Board (Chris Mavergames [ [|1] , [|2] , [|3] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">])

<span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif;">Industry-funded research (to prevent <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif;">[|data dredging] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif;">)
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">04/2012 Eichler et al <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|Open Clinical Trial Data for All? A View from Regulators] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">Plos Med
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">10/2012 US IOM <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|Sharing Clinical Research Data Workshop] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;"> ( <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|report] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">)
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">10/2012 BMJ‘s open data campaign <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[]
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">11/2012 European Medicines Agency <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|Workshop on clinical-trial data and transparency]

<span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif;">2013
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">AllTrials campaign <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;"> (Dr Ben Goldacre, author of <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|Bad][|Pharma] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">)
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">US’s <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|Making Open and Machine Readable the New Default for Government Information]
 * <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">EU legislation proposed on this <span style="background-color: #ffffff; color: #003366; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">[|blog] <span style="background-color: #ffffff; font-family: Arial,Helvetica,FreeSans,sans-serif; line-height: 1.5;">about medicines, science and transparency in the EU (also discusses legal actions by Pharma companies against regulators)

Australian Open Health Data
GovPond [|http://www.govpond.org/index.php#search:Health] by WA particiant to GovHack

RPI (leading US research institute for Semantic Web and Open Data) has an international search engine for open data set which works well [] (select Health and Australia)

Open Health Data in the US
<span style="color: #5e5e5e; display: block; font-family: Calibri,sans-serif; font-size: 14px;"> <span style="color: #5e5e5e; display: block; font-family: Calibri,sans-serif; font-size: 14px;"> (US example) Department of Health and Human Services Open Government Plan Version 2.0 April 9, 2012 @http://www.hhs.gov/open/plan/opengovernmentplan/openplanversion2.pdf <span style="color: #5e5e5e; display: block; font-family: Calibri,sans-serif; font-size: 14px;"> <span style="color: #5e5e5e; display: block; font-family: Calibri,sans-serif; font-size: 14px;"> Exciting Developments at Health.Data.Gov @http://semanticweb.com/exciting-developments-at-health-data-gov_b20602 and @http://www.data.gov/health/blog/clinical-quality-linked-data-healthdatagov @http://health.data.gov/cqld/ (slides) @http://www.slideshare.net/george.thomas.name/hdi-iii-healthdatagov-now-next-and-challenges (slides)
 * @http://www.hhs.gov/open/datasets/index.html and @http://www.healthdata.gov/
 * NY State @https://health.data.ny.gov/ METRIX @http://www.health.ny.gov/metrix/roll_out.htm

Health Datapalooza [|http://healthdatapalooza.org/history-of-the-health-datapalooza/]Palooza are hack days with a special "discuss your business plan" part at the end of the event. And here is the associated Video site []

Hack Days (UPDATED Oct 2014)

 * [] and [|http://hackingmedicine.mit.edu/health-hackathon-database/] by []
 * [] (incl. past events with info on winners)
 * [|http://hacks.rewiredstate.org/events/bmj] via Can they hack it? Yes they can []
 * [] by []
 * Health UP, a 2 day hackathon (Singapore) [] (links to presentations now broken)

Hack Days
Recognise the different types of (Health) Hack days:
 * Mobile, apps eg Health Hack Day Sweden or HEALTH HACK DUBLIN 2013 []
 * Open data and data owners hackathon eg (Berkeley) Hacking Health @http://blogs.ischool.berkeley.edu/hackinghealth/ or NHS Hack days [] and [|https://groups.google.com/forum/#!forum/nhshackday]
 * Platform / API companies or organisations eg MedHelp [] ( APIs [] ) and []
 * Semantics eg Semantic Trilogy conference Hackathon []
 * Cutting edge science Hack days eg Human Brain Hackathon []


 * HackingMedicine@MIT** []
 * Mission: Create an ecosystem at MIT, hosting the Boston medical community and beyond to teach entrepreneurs and clinicians the skills necessary to launch disruptive healthcare businesses.
 * via a [|interesting comment] in [|Who Owns Hackathon Inventions?] by Alan Steele | 9:00 AM June 11, 2013

Possibly get in contact with the Swedes (they have a meetup group and have shared a lot of information

Health Hack Day Sweden [] Health Hack Weekend (May 17-19) with speakers, networking and a 24 hour hackathon with new innovations in mobile health, self tracking and other solutions related to healthcare, selfcare or wellness and videos on YouTube []

(2012 : [] ) Winners presentations at [] [] (the twitter and facebook pages are less focused on hack days [] / [] )

Also on my list:
 * Data Science Hackathon @http://datasciencehackathon.com/the-challenge/